Biogen strongly believes that collaboration with Healthcare Professionals and Healthcare Organisations is crucial to discover, develop and deliver innovative therapies that improve the lives of patients. At the same time, we believe that these interactions must be conducted openly and transparently.

As a member of EFPIA (the European Federation of Pharmaceutical Industries and Associations) and the ABPI (Association of the British Pharmaceutical Industry), Biogen is proud to endorse and uphold the EFPIA Disclosure Code and the ABPI Code of Practice disclosure requirements. In line with the codes, Biogen has been collecting all payments and contributions made to HCPs and HCOs since January 2015.

These payments are published on Disclosure UK, the ABPI's disclosure database, on their website.

BI-PAN-0404b(3)    Date of Preparation:  August 2017

Biogen is proud to work with Patient Organisations and support their efforts to improve the lives of their members and raise awareness of serious medical conditions. We are aligned in enhancing patient advocacy and supporting medical research for the discovery of effective therapies. Below is a breakdown of the support Biogen has provided to Patient Organisations in the UK.

2016

In 2016 Biogen contributed £266,925.55 to UK Patient Organisations.

Patient organisation Project Amount of support
Alzheimer's Disease International Global Supporter Annual Sponsorship £13,690.20
Alzheimer's Disease International Sponsorship of World Alzheimer’s Month 2016 £7,446.60
Alzheimer's Disease International Support of Alzheimer University £20,011.25
MS Society Sponsor of the MS Society Awards 2016 £20,000.00
MS Society Sponsorship of MS Life 2016 £25,000.00
MS Trust Funding towards MS Trust Annual Conference, 8-10th November 2015 £32,200.00
MS Trust Stand at MS Trust Annual Conference, 6-7th November 2016 £3,500.00
MS Trust Platinum Sponsorship of MS Trust Annual Conference, 6-7th November 2016 £30,000.00
MS Trust Speaker fee for South West and Wales Group (SWAWG) Meeting, 3rd- 4th December 2015 £337.50
MS Trust Speaker fee for MS Nurse Prescribing Steering Committee Meeting, 1st July 2016 £720.00
Parkinson's UK Funding towards printing of Information at Diagnosis Leaflets £500.00
Revive MS Support Grant for funding towards the post of a Band 6 MS Nurse for 3 years £61,505.00
Shift.ms Funding towards Localised European Support Pilot – Phase I £32,015.00
Spinal Muscular Atrophy Support UK Funding towards SMA Support UK, SMA Outreach Service £20,000.00

2015

In 2015 Biogen contributed £145,401.72 to UK Patient Organisations

Patient organisation Project Amount of support
First Community Health and Care Grant for Patient Day £572.00
MS Society Speaker fee for RIMS 19th Annual Conference £150.00
MS Trust Support for MS Trust Annual Conference £28,793.75
MS Trust Support for MS Trust Annual Conference £4,843.00
MS Trust MS Nurse Mentoring £48,228.75
MS Trust Donation to The Therapist Education £10,000.00
MS Trust Grant for upgrade of the MS Trust website £15,000.00
MS Trust Grant towards the cost of the provision of tools and resources for MS Specialists £15,000.00
MS Trust Stand at MS Trust Annual Conference £3,350.00
Shift.MS Volunteer support for one year £15,000.00
Shift.MS Funding for #NoTwoTheSame (Giant Colouring In) £4,464.22

2014

In 2014 Biogen contributed £87,754.18 to UK Patient Organisations

Patient organisation Project Amount of support
MS Society Printing costs towards leaflets for newly diagnosed patients across Norfolk £300.00
MS Society Sponsorship of MS Life Meeting, 26-27 April 2014 £38,500.00
MS Trust Sponsorship of RIMS (Rehabilitation in MS) 19th Annual Conference, 6-7 June 2014 £12,000.00
MS Trust Sponsorship of MS Trust Conference, 9-11 November 2014 £400.00
MS Trust Support towards trading merchandise £54.18
Shift.MS Funding towards running costs £10,000.00
Shift.MS Funding for website development £22,000.00
Surrey Young Carers Funding for Carer Information Days £5,000.00

2013

In 2013 Biogen contributed £87,950.98 to UK Patient Organisations

Patient organisation Project Amount of support
MS Society Donation in respect of MS Fundraiser of the Year award £6,000.00

MS Society

Donation in response to request from carer to sponsor charity event on behalf of MS Society £500.00
MS Society Donation in response to request from employee to sponsor Marlow Half Marathon on behalf of MS Society £250.00
MS Society Employee donations from cake sale £204.23
MS Society Employee donations raised from MS Week activities £286.57

MS Society

Funding for Needs Analysis Project for patients with MS £15,000.00
MSS Trading Limited Donation towards MS Frontiers Meeting £15,000.00
MS Trust Donation towards MS Specialist Study Day dedicated to the topic of 'Fatigue' £200.00
MS Trust Donation towards MS Trust and ACPIN Scotland Study Day for health and social care professionals who have an interest in MS and manage an active clinical case load £200.00
MS Trust Funding towards cost of a survey to evaluate services provided £14,805.00

MS Trust

Funding towards Therapist Education Fund for MS therapists £5,000.00
MS Trust Support for MS Trust Annual Conference £30,451.00
MS Trust Support towards trading merchandise £54.18

2012

In 2012 Biogen contributed £27,994.00 to UK Patient Organisations

Patient organisation Project Amount of support
MS Society Support for nurse professional education £308.00
MS Society Donation in response to request from healthcare professional to sponsor participation in the London Marathon on behalf of MS Society £200.00
MS Society Contribution to costs of Symptom Management Day for Patients £350.00
MS Society Charitable donation in respect of Biogen employees completion of the 3 Peaks walking challenge £5,000.00
MS Society Donation in respect of MS Fundraiser of the Year Award £6,000.00
MS Society Support for Sussex MS Nurses Development Group Meeting £936.00

MS Society (Northern Ireland)

Donation in response to request for sponsorship of charity event £200.00

MS Trust

Donation to the MS Trust Trerapists Education Fund £5,000.00

MS Trust

1 year funding for employment of charity administrator £10,000.00

BI-PAN-0404b(3)    Date of Preparation:  August 2017

Biogen strongly believes that collaboration with Healthcare Professionals is crucial to discover, develop and deliver innovative therapies that improve the lives of patients. At the core of this relationship is the ability to share knowledge in order to improve patient outcomes. At the same time, we believe that Biogen’s interactions with HCPs must be conducted openly and transparently, as embodied by the principles of the EFPIA Disclosure Code and the ABPI Code of Practice.    

To this end, Biogen supports the decision to publically disclose the payments and contributions made to HCPs. By committing ourselves to the highest standards of integrity and accountability, we look to lead our industry in building trust with the communities we serve. Below is a breakdown of the support Biogen provided to HCPs in 2014 and will remain thereon until 31 March 2018 as required by the ABPI Code of Practice.

Payments made from 2015 onwards are published on Disclosure UK, the ABPI's disclosure database, on their website.

Consultancy Fees 2014

Biogen engaged the services of 187 UK HCPs and paid a total of £424,315.77 in fees and expenses for those services.

Number of HCPs Engaged 187
Aggregate fees paid in return for HCP services £382,837.66
Aggregate expenses paid in support of HCP services £41,478.11
Total paid for HCP services £424,315.77

Sponsorship of Healthcare Professionals 2014

Biogen supported the education of 107 HCPs through the provision of £241,028.93 in travel grants to cover the costs of travel, accommodation and registration fees for courses and conferences.

Number of HCPs sponsored/supported 107
Aggregate travel costs (international only) £118,178.15
Aggregate accommodation costs £84,302.16
Aggregate costs of registration fees £38,548.32
Total sponsorship contributions £241,028.93

BI-PAN-0404b(3)    Date of Preparation:  August 2017

OPTIMISE: a data capture and management tool to achieve improved pharmacovigilance and develop approaches for stratified medicine in multiple sclerosis (MS)

During a period of consultation between doctors working within the field of MS and industry representatives in 2012-13, it was jointly agreed there was a need for the development of an improved IT tool for gathering and managing large datasets to derive information relevant to pharmacovigilance and stratified medicine in MS. Design requirements for such a tool were identified to involve capture of clinical, patient-centred, genomic, biomarker and imaging data and their secure management and analysis within a low cost, scalable IT environment. Effective deployment of such a tool would facilitate greatly improved treatment for individual MS patients and better inform doctors, the health service and industry about patient needs.

To address this need, a joint project between Imperial College London and Biogen Idec Ltd, named OPTIMISE, has been initiated. The project will be open to additional partners who share the common joint working objectives and contribute to the tool’s development and dissemination to relevant healthcare stakeholders.

The first stage of the project is intended to develop a monitoring and database tool for the characterisation of MS patient populations and their responses to treatment (the “Optimise Portal”) within a 3 year time period. The software infrastructure will be based on the eTRIKS platform with associated hardware, apps and sensors to capture data from clinicians and patients. Initial work will involve piloting the use of the tool (based on design criteria and expert concept input from both partner organisations) within the clinical environment of Imperial College London and other UK clinical academic partner organisations that may be involved. The intended output is a validated, fit for purpose tool that is able to be shared broadly through open release to relevant stakeholder groups. A subsequent, second stage of the project is planned (subject to additional funding) that will involve a much larger number of clinical centres and industry partners for the gathering of sufficient data to enable pharmacovigilance and stratified medicine predictive algorithms to be developed.

An initial workplan has been defined by Biogen Idec Ltd and Imperial College London representatives with the formation of a Joint Project Group for oversight of progress made relative to intended objectives. Outcomes will be disseminated as conference proceedings and on a dedicated website hosted by Imperial College London (www.optimise-ms.org).

Further information is available from Professor Paul Matthews, Head of the Division of Brain Sciences and Edmond and Lily Safra Chair in Translational Neuroscience and Therapeutics, Department of Medicine, Imperial College London (p.matthews@imperial.ac.uk), lead investigator for OPTIMISE.

OPTIMISE is supported by Biogen Idec Ltd

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Biogen UK Grants and Donations Programme

As part of our commitment to good corporate citizenship, Biogen provides financial support in the form of grants and donations for the purposes of advancing medical education and science, and improving the lives of patients with debilitating medical conditions. In order to be considered for a grant or donation, applicants will need to complete and submit an application form.

Biogen is only able to consider requests from not-for-profit organisations involved in the provision of healthcare related services or patient support. Applications are reviewed in accordance with the Association of British Pharmaceutical Industry (ABPI) Code of Practice. If successful, funding may only be provided to the organisation, not the individual submitting the request.

Applications are reviewed on a periodic basis by our Grants and Donations Review Committee comprised of members of the UK Senior Management Team. Applications will be reviewed and applicants notified of the outcome of their application in due course.

Please click here to download a copy of our Grants and Donations application form. Once completed, please email the form with the relevant supporting documents to DL-grantrequests.uki@biogen.com

Alternatively, please complete the form and send it with the relevant supporting documents to:
Grant & Donation Requests
Biogen Idec Ltd.
Innovation House
70 Norden Road
Maidenhead,
Berkshire
SL6 4AY

2015 Onwards

Funding provided by Biogen from 2015 onwards, in the form of Grants & Donations, are published on Disclosure UK, the ABPI’s disclosure database, on their website.

2014

Biogen contributed £552,933.65 to Healthcare Organisations in the form of grants and donations in 2014. Below is a breakdown of the support Biogen provided.

Patient organization Project Amount of support
Barts and the London School of Medicine and Dentistry MS Disease Modifying app £24,000.00
Barts and the London School of Medicine and Dentistry NEDA Meeting, 14 March 2014 £5,000.00
Barts NHS Trust MS Nurse for 1 year (band 6) £46,713.00
Basildon Hospital MS Research and Information Evening, 30 September 2013 £1,125.00
Broomfield Hospital MS Nurse (part-time) £3,307.00
Charing Cross Hospital Patient Day, 26 September 2014 £30,000.00
Craigavon Area Hospital NS Nurse Specialist for 1 year (band 6) £44,867.00
Darent Valley Hospital MS Counsellor for 1 year £3,200.00
Hillingdon Hospital Administration support for 6  months (part-time) £2,901.60
Imperial College Healthcare NHS Trust Nurse support for 1 year (band 3) £26,029.00
John Radcliffe Hospital Infusion equipment £11,301.25
John Radcliffe Hospital Patient Information Day, 08 March 2014 £1,250.00
John Radcliffe Hospital Tomography scanner £80,000.00
Kingston Hospital MS Nurse for 1 year £23,712.00
Morriston Hospital MS Nurse (part-time) £7,768.00
Multiple Sclerosis Therapy Centre (Oxford) Gym equipment and audio visual monitor £3,500.00
Multiple Sclerosis Therapy Centre (Samson Centre) Physiotherapy costs £20,000.00
North Devon District Hospital Administration support for 2 years (part-time) £15,055.00
Overdale Hospital Infusion Nurse for 1 year £32,829.00
Pinderfields Hospital Infusion chairs and pumps £17,484.00
Queens Medical Centre MRI patient scans £25,000.00
Raigmore Hospital Infusion equipment £1,314.00
Royal Gwent Hospital Funding for fridge £582.00
Royal Gwent Hospital Patient Day, 08 September 2014 £520.00
Royal Gwent Hospital MS Co-ordinator for 1 year £26,750.30
Salford Royal Infirmary Infusion chairs x6 £5,568.00
Southampton General Hospital Infusion chairs and pumps £7,422.00
South Devon Healthcare NHS Trust MS Specialist Nurse (year 2 of funding) £28,508.50
Southend Hospital NHS Trust MS Roadshow, 07 October 2013 £500.00
Southern General Hospital MS Nurse and Admin support for 1 year £51,663.00
St. Georges Hospital Newly Diagnosed Day, 21 November 2014 £840.00
Sussex Community NHS Trust Purchase of the publication ‘Shrinking the Smirch’ £1,699.00
University of Wales South Wales MS Day, 03 July 2014 £2,525.00

BI-PAN-0404b(3)    Date of Preparation:  August 2017